I know I have been absent in the pages of this cherished blog. For many reasons, but mostly because, over the course of the last 18 or so months, words have poured out of me. I had to get our story, my story out of me. The flood gates opened and before I knew it, 250 pages telling the good, the bad, the ugly and the entirety of my story start to “finish” was, well, finished. Since then, I’ve been sitting on it, pondering my options, considering the immense vulnerability this would require, and having, at equitable intervals, much confidence and much (MUCH) self-doubt.
While all this internal dialogue was happening, I began to
have this bubbling of realizations emerge from within me. I had filled many of the pages of my story with feelings
and confidence over the “resolution” of my journey. Over the years, I have put in so much freaking
work to wade through the muck of what began that day in November and the
millions of repercussions that trickled into my life and my psyche since. Having
written much about the last nine years, I’ve only recently begun to lack
confidence in my emotional and mental resolutions. I had written myself into those pages to be
ok. Resolved. My trauma, my healing, my next steps all
tidied up into a neat little package. Lately,
that hasn’t felt true. My story, I’m
understanding, will never be neat, tidy, or most of all, gulp, resolved.
Over the course of the last month or two, I’ve experienced
an unexpected tsunami of grief. A few mostly
uneventful but contemplative scenarios were set forth in front of me that left
my head spinning. One, a minor medical
procedure Elena had turned out to be incredibly painful….for me. And second a benign event that offered me a
look into our future in caring for Elena (which I mostly avoid at all costs). What these two combined experiences were
successful at doing, was opening this great chasm of grief inside me, spilling
out into the pages of my journal. A
couple weeks ago, following Elena’s procedure I wrote this:
"Like so many times before, I sat in a sterile hospital room
steeling myself against all emotion.
Swallowing lump after lump in my throat, my eyes burn with tears, as I
stare at the fluorescent lights above begging my them to dissolve themselves
before spilling down my face. It’s a
scene replayed every damn time I’m in that hospital, every damn time I spend an
hour detailing Elena’s current issues with doctors in hopes of some relief or
resolution. Just make it back to the
car, Emmalee. That’s what I tell myself. Don’t fall apart in front of them,
Emmalee. Make it to the car. Don’t make it about you. Focus on Elena. You’re almost there.
I always make it to the car, thankful for a vast and dark
parking garage. I slide into the driver
seat as the sobs finally are freed. I
follow the signs for the exit through eyes blurred with tears. This is my routine. I give permission to feel, to release, and be
angry. Because every time I’m
angry. I’m mad that this is my
life. This is her life. That I have to do this. That I have to watch this. That I have to see my daughter subjected to
pain, to prodding, to injections, to surgeries, to tube feedings, to grueling
therapy, to endless medications, to diapers, to having decisions made for her
always and forever, to wondering how she feels about something, to answering
questions for her, to picking out braces and wheelchairs and standers and
strollers, to this life that we live together.
It isn’t fair. It’s cruel. It’s impossible. It’s heartbreaking. Every damn time. I cry for all of this. Every damn time."
In the weeks since I wrote that, I have been grappling,
almost incredulously, at my inability to pull myself together. Usually I’m able
to get it out, purge the pain and move on.
But a week later, I cried through lunch with a friend. The next week my best friend called and I
broke down immediately in sobs. I couldn’t
fill Chad in on my day without crying into his shoulder. Why was I constantly crying? Where was this coming from? Why couldn’t I just choose joy? Get a grip, Emmalee!
As if the light switched back on, I realized my old companion
grief was standing right in front of me.
I was in the dark because I didn’t want to acknowledge that it was
there. I was afraid of falling back into
the grief pit. I was trying to outrun what
is, in reality, a part of me. There is
this constant incongruence in my life, joy and grief, each a magnet trying
desperately to pull me to one side or the other. My recent days have felt like one of those ambiguous
optical illusions that hold two different images in one. Do you see the duck or the rabbit, the two
faces or the vase? Each day, two images,
one person. One that consciously chooses
to see the joy, the abundance. And the
other that, at times, is utterly devastated by overwhelming grief. Both exist together, within me. Both create a frustrated wrestling back and
forth.
Call me Captain Obvious, but somehow I only recently
realized this….that my grief is forever. Like forever, ever. For whatever reason in my head, I believed with the “acceptance” of my
life and my ability to feel at peace with it, the grief would fade or only
lightly and delicately, with the best manners, reveal itself on occasion. It had, I guess, never occurred to me that with
every new phase of Elena’s life, with every new transition, with every new
adaptation, with every new realization of what will never be, with every stark
difference between our reality and everyone else’s, it always be my
companion. A forever friend that will
take my hand and make me remember that my heart will remain broken, forever.
Maybe I had some understanding of this concept in the last
few years. Perhaps I shouldn’t be so
surprised by this and that when the wave comes, it hurts all the same, but I
am. It catches me off guard every
time. And every time it takes me a
minute to turn the lights on and recognize what grips me. Ohhhhhh yeah, ‘sup grief you’re back and you’re
annoying. Then resumes my internal
struggle between living my life with joy and gratitude and giving recognition
to the pain that exists there too.
Part of my healing continues to be learning to reconcile
these together, to accept both, to understand that the opposing forces will
always be opposing but I must learn to exist with and acknowledge both, because
both are entirely deserving and both are entirely, me. When I allow myself to acknowledge it, feel
it, let it swallow me, it gives me a feeling of validity. That my life, my experience, my feelings are
real and worthy to be mourned. Grief in,
cruel, ironic way, affirms me.
There was a quote on Brene Brown’s Instagram page recently,
“Grief requires witnessing. The need is
for someone to be fully present to the magnitude of their loss without trying
to point out the silver lining.” I’m
totally a silver lining girl, but it’s also necessary for me to remain honest
about the challenges of my life and allow myself room to mourn the losses I
experience daily. The grief can also serve
as a baptism of sorts for the routine that my stride can fall into. It washes away the parts of me that pretend
everything is normal and even and monotonous, reminding me of the importance of
my loss, my challenges, what will never be.
It’s a constant perspective shift.
By sharing my grief with others, I feel more authentic and honest, which
I believe creates connection. I’m not always ‘such a good mom’ or ‘so
strong’ or ‘so inspiring’. I’m human and
I fall apart. I lose it in my car. I want you to bear witness that my road is
not one of overcoming a trauma, a major life obstacle. It’s overcoming obstacles every single
day. It’s a perpetual cycle of me
falling apart and pulling myself together.
When I feel as though I’m falling apart, and I have to navigate with a
brave face, it reminds me of all the others out there who must do the
same. Better yet, it prompts me to send
silent prayers for those who cannot even muster a brave face, who can’t make it
to their car in the parking garage, who can’t smile for the picture. Grief can offer itself as a connector, not
always an isolator. Valuing both the abundance
and the grief, both pictures of my life, seeing the ‘duck’ and then also
looking for the ‘rabbit, doesn’t create a ‘resolved’ ending, but rather authentic
opportunity to navigate whatever lies ahead.
Does this seem exhausting to you? Because I cannot begin to tell you how
exhausted this makes me or how ridiculous I feel for thinking for one moment
that my chapter of grief and pain and heartache were mostly a thing of the past. But I guess that is what this life is for,
living and learning and preparing yourself to do better for what comes next. And, as for what does come next, I don’t
know. I have a story that I’m still
figuring out how to tell. When I do, I’m
certain it will be the most authentic version I can offer.
